Joint and muscular pain

Akhila · Posted: Thu Nov 26, 2009 12:10 pm Post subject:

If you have specific questions regarding pain, dealing with this and diet, I can ask one of my housemates who also has fibromyalgia (ze's about 37).

(Also, it makes me angry to read your GP didn't want to trust you about this at first, and blamed depression for it, since obviously something was going on.)
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bewylderbeast · Posted: Thu Nov 26, 2009 8:07 pm Post subject:

I'd really appreciate that Akhila, as I'm trying to figure out what foods to avoid.

I was really angry with my GP at first, but now I just feel glad that I know what is going on.
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Akhila · Posted: Thu Nov 26, 2009 10:45 pm Post subject:

I asked my housemate but things appear pretty complex so I'm not sure I can help so much (zir diet is more for comfort than zir fibromyalgia at the moment, but ze did try out a lot of things). Basically, you'll have to try things out for yourself.

There are food complements as well as gluten-free diets which seem to help some people a lot and do wonders for them, but it didn't work much with my friend (not enough to be worth it for zir); but ze also has a specific medical history, because ze went non-medicated for a very long time because doctors would said ze'd make this up and it wasn't real pain ( years ago people with fibro were sent to see psy experts, not doctors). The situation in France isn't great but maybe it's better in your country. : )

Nowadays the only thing that works to some degree for zir is specific pain killers (which, historically, were used for epilepsy or depression), but ze can't take as much as ze need, because ze has troubles dealing with the side effects (zir body react very much to them). Regarding physical activity ze advises that you try to exercice regulary and find balance between not moving anymore and being in pain, because basically the less you'll move, the less your body will be used to handle the least effort, so your situation will worsen and keep getting worse as a vicious circle.

In conclusion this is really about you finding out what's the best for your body in trying out food/diets, medics and whatnot until you find what works the best for you, as well as listen to your body closely to know your limits and not push yourself more than just what you need to stay healthy. And all the usual stuff like, avoid stress, don't drink, don't smoke, etc...

There also are forums you may find on the subject with people talking about their fibro and what works for them, ze said it might help you some.

Maybe the gluten-free or food complement stuff will work for you, I don't know. : (
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bewylderbeast · Posted: Sat Nov 28, 2009 8:22 pm Post subject:

Thanks. This backs-up what my doctor was telling me, but I prefer to hear the experiences of real people.
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Kali_Ava · Posted: Tue Dec 08, 2009 5:57 am Post subject:

There's a book I'm reading for Pain Management in therapy that has an excellent reputation: Manage Your Pain. The research in this book is largely Australian based, but also has useful information for people in the UK as well. Although it's not been too terribly helpful in regards to my own pain so far (I'm only halfway through the book), it has taught me a lot about how pain works, how to keep the body functioning (and how important it is to be active), and how to temporarily reduce pain without depending on specialists or drugs.
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WhiteFox · Posted: Thu Dec 10, 2009 9:50 pm Post subject:

Sorry to be OT, but Kali_ava, does that book talk about general/everyday aches and pains, or is it geared towards more serious issues like what this thread talks about?
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I refuse to have a battle of wits with someone who is unarmed.

Kali_Ava · Posted: Fri Dec 11, 2009 4:05 am Post subject:

It's geared towards dealing with chronic pain. Some of the strategies taught in there could be applied to general pains, I guess, but, no, its focus is on serious issues caused by long-term pain. Here's more about the ADAPT program and the patients they accept.

What does OT stand for?
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WhiteFox · Posted: Fri Dec 11, 2009 5:51 am Post subject:

Thank you

And sorry, OT means "off topic" ^^; I try not to use abbreviations, but I forget, lol.
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I refuse to have a battle of wits with someone who is unarmed.

Akhila · Posted: Fri Dec 11, 2009 9:05 am Post subject:

(Eh. The exclusive criteria "can't speak adequate English" got me a bit "uh?" : / talk about social criterias and access to health services.)
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aisteach · Posted: Fri Dec 11, 2009 1:44 pm Post subject:

Kali_Ava · Posted: Sat Dec 12, 2009 7:34 am Post subject: